Development and establishment of the National Metadata Repositories (NMDR)

Clinical research is increasingly dependent on consistently defined characteristics, e.g. for the re-use of clinical data from the supply in studies, the pooling of study data in multicenter studies or even the implementation of meta-studies. Internationally, there is a considerable effort to establish metadata repositories (MDR) or official registers in order to designate relevant data elements such as a blood pressure uniformly, incl. definitions and annotations with codes of standardized vocabularies. Based on this, software services can be developed to provide semantic data integration.

This challenge was also recognized by the Technology and Methods Platform for Networked Medical Research (TMF), which has already funded preliminary work on this subject. The strategic goal of this DFG project is to establish a collaborative, quality-assured, neutral, permanent, free and accessible metadata register for clinical and epidemiological research in Germany. The categories mentioned are the result of a requirement analysis, which was conducted as part of the TMF project "Community-evaluation MDR". The envisioned results should support all clinical researchers, science-initiated studies, registers or cohorts that are dependent on high-quality data . At the same time, these points are not sufficiently addressed by any existing system.

Participants include scientists from Leipzig, Lübeck, Jena, Heidelberg and Berlin.

Selected Publications:

  1. Ulrich H., Kock A.K., Duhm-Harbeck P., Habermann J.K., Ingenerf J.
    Metadata Repository for Improved Data Sharing and Reuse Based on HL7 FHIR
    In: MIE-Conference (scoped by HEC 2016) in Munich [paper accepted]; 2016

Project-Team:

M.Sc. A.-K. Kock-Schoppenhauer
M.Sc. H. Ulrich
Prof. Dr. J. Ingenerf

 

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Created at March 16, 2017 - 3:20pm.

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